Chad Carr

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Chad Carr is a precious, beautiful, fun-loving boy who on September 23rd, 2014 was diagnosed with an inoperable brain tumor called Diffuse Intrinsic Pontine Glioma (DIPG). Three days later, he spent his 4th birthday in the Coach Carr Unit of Mott Children’s Hospital in Ann Arbor, Michigan (The Coach Carr Unit is named after Chad’s grandfather, former University of Michigan football coach Lloyd Carr). Chad would undergo 30 rounds of radiation at Mott, and then participated in a clinical trial at Memorial Sloan Kettering Cancer Center in New York.

Within days of being diagnosed, a family friend, Michael Sydlowski, came up with the slogan “ChadTough” as a way for people to show support for Chad. Thanks to social media, word of Chad’s fight continued to spread through the Twitter hashtag #chadtough and the Facebook page Pray for Chad Carr. Numerous stories have been written about Chad’s journey including articles from the Huffington Post, Today and ABC News. The Ann Arbor News has followed Chad throughout his journey. Chad even got his very own superhero theme song thanks to his friends Ariel, Zoey & Eli. All of this has brought much needed awareness to a truly devastating disease.

Chad has 2 older brothers, CJ and Tommy, who he loves more than anything. Orange is Chad’s favorite color (he made this his favorite color after hearing that it was Tommy’s favorite). He has 3 cousins, Drew, Sydney and Casey who are like sisters to him. He is a huge animal lover and his 2 stuffed animal doggies, Barley and Frederick, are never far from his side. He has a cat named Baxter and for his birthday last year his neighbors got him his greatest wish, a dog. He named the dog, Tootie!

Unlike his brothers, he is an eclectic eater. Some of his favorite foods include – tofu, miso soup, olives, peppers & pickles. Pizza is also at the top of his list. He enjoyed experiencing pizza in NY but he says the best is Pizza House in Ann Arbor (bacon and olive round!). He is a huge music lover and has great dance moves. As a child with 2 older brothers, he especially likes any song that features the word, ‘butt’. More of his favorite things – stickers, arts and crafts, hot tubs, shells, Paw Patrol, Blaze, “would you rather” questions, helping mommy cook, playing sports with daddy, digging for worms, his best friend Cooper, Bubba and Nini, Chuck E Cheese, and any holiday.

Chad lost his battle to DIPG on November 23, 2015.


#ChadTough Story on ESPN

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