Tammi Carr spent Wednesday (March 29) in Washington D.C. with Jason, CJ, and Tommy urging lawmakers to stop proposed budgets cuts to the National Institutes of Health (NIH).
Fighting through tears, Tammi shared Chad’s story to shed light on the cruel reality that rare diseases like Diffuse Intrinsic Pontine Glioma (DIPG) bring.
“As we’ve learned, pediatric cancer overall receives only 4-percent of all federal research dollars, and this so-called ‘rare disease,’ DIPG, doesn’t make the cut for significant funding,” she said. “Cancer kills about 2,000 children every year and 300 of those deaths are from DIPG.
“Now, that may not seem like a lot of people in the grand scheme of things, but when you think of that many children dying year after year over so many years, you start to understand the thousands and thousands of years of life that these children never see.
“How many families need to be impacted before we can see some change?”
Tammi’s testimony was moving and strong and has been written about both locally and nationally. You can watch the hearing on CSPAN.org and read the clips below.
News Clips – Wed., March 29
- Carr talks to Congress about cancer research funding – Angelique S. Chengelis, The Detroit News
- Tammi Carr testifies before Congress over proposed budget cut – Mark Snyder, Detroit Free Press
- After Losing Son, Mother Urges Congress to Save NIH Funding – Jade Scipioni, Fox Business
- Chad Carr’s mother to advocate for NIH funding in front of House committee – Martin Slagter, MLive