The ChadTough Defeat DIPG Foundation funds the most innovative, promising research on DIPG, which is underfunded compared to most cancers. The foundation is powered by parents who have faced a pediatric brain cancer diagnosis with their own children, many of whom have unfortunately passed away. The ChadTough Defeat DIPG research program is guided by a Scientific Advisory Council made up of the leading experts in the field.
While the survival rate for DIPG is still nearly 0%, doctors now believe a cure for DIPG is within reach.
The ChadTough Defeat DIPG Foundation will continue to be a part of this fight until DIPG is no longer a death sentence.
For the last five years, both foundations worked, separately and as partners, to fund pediatric brain cancer research with a focus on DIPG. These two original foundations committed over $12 million in research funding across 21 institutions prior to uniting. The new foundation remains committed to this same, shared mission. The new union significantly increases the potential of finding a cure for pediatric brain cancer more quickly by streamlining operations through a single nonprofit to fund more projects at a higher level. The ChadTough Defeat DIPG Foundation’s co-founders, Jason and Tammi Carr and Mark and Jenny Mosier, are actively involved in the foundation’s governance and operations.
The foundation is powered by parents committed to changing the outcome for future families facing a pediatric brain cancer diagnosis, especially DIPG, in honor of their children. Both the Carrs and Mosiers lost their sons, 5-year-old Chad and 6-year-old Michael, in 2015 to this horrible disease. The Carrs and Mosiers are joined by a growing, nationwide team of Family Partners who have experienced the devastation of pediatric brain cancer. The ChadTough Defeat DIPG Foundation knows that we are tougher together. The families at the heart of the foundation’s work are passionate about fighting for a cure so future families can experience a different, more hopeful journey.
Our vision is for DIPG to no longer be a death sentence.
The mission of the ChadTough Defeat DIPG Foundation is to inspire and fund game-changing research to discover effective treatments for pediatric brain cancer, with an emphasis on diffuse intrinsic pontine glioma (DIPG).
Brain cancer is killing more kids than any other type of cancer. DIPG represents 10% of all pediatric brain tumors but nearly 50% of all pediatric brain cancer deaths.
These are the values that guide all that we do:
- Family – We believe in prioritizing family, and we believe in acting like a family. Life is too short to miss opportunities to be with our families. We value relationships and informality.
- Collaboration – We work collaboratively internally and externally, and we only fund researchers who fully collaborate with other researchers because we believe collaboration leads to the best results and the most efficient use of funds.
- Integrity – We adhere to moral and ethical principles.
- Transparency – We will operate openly and candidly and provide full disclosure on issues around conflicts of interest, operations, and funding practices.
- Toughness – We are resilient, and we fund resilient researchers. This battle against DIPG will present frustrations, disappointments, and setbacks, but our toughness, inspired by Chad and Michael, will ensure our eventual victory.