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Our kids inspire us to fight to defeat DIPG.

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Donation Total: $60.00 One Time

September 25, 2007 – June 18, 2017

Diagnosed: July 12, 2015

Written by Zamora’s mom, Marisa

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Zamora Moon (Zamora Martinez Lusinchi) was diagnosed with DIPG on July 12, 2015, after she had suddenly started suffering from double vision and had trouble with her balance.  She underwent radiation therapy, which she finished on September 8, 2015.  Zamora is a brave and inspiring little girl who likes to write stories and attend school.

After an initial period of symptoms where Zamora had trouble with movement on her right side, swallowing, and speaking, Zamora is getting stronger and almost off steroids. We know that this is the “HoneyMoon Period” Where they are a glimpse of their old self, but we are determined for her to stay on this Honey Moon until she is in her 90’s. I know this is wishful thinking , but how can a mom think their child will die?  Zamora has a lot to do in this world yet.  She will be going to KOLN Germany January 1 through 21 to do immunotherapy. 

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Insurance does not cover this 70,000 treatment, so we are fundraising like crazy, and we are part of an amazing network. As soon as Zamora’s cysts burst, we will be going to Bristol to make sure she gets the CED process. I will be starting back to work Jan. 4 as a kindergarten teacher in my classroom at Harvey Milk Civil Rights Academy Elementary in San Francisco. My heart is broken, but I am strong to continue my work under a principal who is so caring. We thank you for your support and love, prayers cards and all the hedgehogs and essential oils. Sending every one light and love, hug your children more, and don’t worry about the small stuff.

Zamora passed away from DIPG on June 18, 2017. (Source: Click here

Zamora’s Facebook page

 

 

 

 

 

 

 

What is DIPG?

DIPG is a devastating and aggressive brain tumor typically found in children.

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