On September 4, 2014, Michael was diagnosed with a tumor in his brain stem called a diffuse intrinsic pontine glioma (DIPG). Michael had just turned six years old and started kindergarten. He was an active and energetic little boy with a thirst for learning. He had a huge smile that would light up a room.
Michael rarely complained during the unbelievably difficult 8 ½ months that followed. Even in his last days of life, when he could no longer eat, speak, or move, Michael wanted his teacher to come to the house to go over his school lessons.
We threw Michael a Big Hero 6 Movie Night Half Birthday Party when Michael turned six and a half. It is an unbelievable experience to try to happily celebrate your child’s half birthday, knowing that you may not see his next actual one.
Michael passed away on May 17, 2015, after a heroic battle, and he is remembered and missed greatly each and every day.