Giving Tuesday

Londyn

Our amazing friend Londyn is one of the many inspirations for our work to Defeat DIPG. Londyn is 6 months from diagnosis, and is currently enrolled in the ONC201 clinical trial through Dr. Carl Koschmann at Michigan Medicine.  Londyn has been responding well and her latest scans look great. Please join us in sending positive thoughts to Londyn and her family for continued success!

Ryder

Ryder Knechtle (Rally for Ryder) was diagnosed with DIPG on July 12, 2020.  He is a happy, active 5 year old who enjoys puppies, superheroes, and playing with his two older brothers. After taking part in the ONC201 clinical trial, Ryder is doing exceptionally well and his tumor has remained stable.

“The most important thing I’ve learned throughout this journey is to never give up hope!  When we first learned of Ryder’s diagnosis, we almost did.  But in talking to other DIPG families, we found it and are holding on tight in the hope that new research will change the outcome for Ryder and so many other kids fighting.” – Jenna Henn Knechtle

Mason

Mason is 5 years old and has been fighting DIPG since this past May.  This summer, he underwent 30 rounds of radiation while his family searched for new trials and options that might guide them on the next step of their journey.

Time is not on your side with DIPG.  From the moment of diagnosis, parents are racing against the clock to find a miracle for their kids. This is why your donations and funding for research is so critical.